Tuesday, December 11, 2012

My faithful watch dog



Hidden Message?

Hey Everybody

 A couple months ago - my watch dog was barking, her someone is here bark, I looked out and noticed that there was a pink semi parked next door. Than Someone knocked on my back door, disregarding Sugar's attempt to protect me.  A gray haired and bearded man had stopped by for a visit. He said you want to get rid of the VW car in the driveway? My response was no  I am saving it for my Grandson. He sort of wanted to make his point. You called me and said you wanted $150  for it and I am here to pick it up. My comment,  I did not call you, he said well someone did how else would I know you had the car.... I suggested maybe a prank call other wise I have no idea and if I was going to sell it would be for a lot more that $150 - the car is in good shape! He stood there for a few moments and looked at me and my bald head. Than he left.
 After a few days I realized I knew him. His name was Ken Kallmeyer. I knew him  from 30 years  ago. I worked at the bank in the collection department, which involved repoing cars. (long before the show repo man) Ken had a  towing business and we used him to pickup cars. Hmmm strange.
I was a bit concerned about this guy coming to my door with this made up story. A good reason to keep the doors locked.  However  I got over it. Out of site out of mind.

Now days we do not always see the obituaries, or at least I don't as I get all  my news on line. We get a little local paper "Kenton County Recorder". I happened to notice Ken's name - he had died. I had the strangest feeling when I saw this .  He was 71.  His wife had died previously and  the family requested donations to the The Susan G. Komen for the Cure, Breast Cancer Foundation, often referred to as simply Komen, which is the most widely known cancer foundation.
I think this explains why Ken had a pink semi truck, his wife died of breast cancer. Why did he wind up at my backdoor - I am not sure. I feel there was a hidden message, guess I will never know exactly. I think he wanted me to keep fighting not just for myself but also for others.. A great guy  and he drove around in a pink semi! Rest in peace Ken:)
 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Here is my health update. I feel great!. Last week I had one of those dreaded colonscopys. I had to cross my fingers and hope for the best - that worked everything was good. So I am good for another  five years. A very good thing. I still see my oncologist Dr Bandari every three months. I had a blood test yesterday. I meet with Dr Bandari  on the 17th. I see Dr. Michael Guenther (my surgical oncologist) ever six months. I have been taking the drug tamoxifen , I do know that there has been a recent study showing that there is another drug that is more effect that I will be taking soon. ( at blocking cancer cells) with post menopausal woman at high risk for reoccurrence. So everything is in control!   I am postive  life is good:) Peter and I are good. I am beating the crap out of this cancer!!!



 

Wednesday, October 24, 2012

World Cancer Day



Begin forwarded message:
From: ELIZABETH PEEPLES <peeples_e@bellsouth.net>
Date: October 23, 2012 12:52:05 PM EDT
To: Susan Griffin <sgriffin@att.net>
Subject: Fw: Fwd: Fw: A small request and  it's just one line. Gayle



Monday is world cancer day...I'd appreciate it

if you would forward this request.

A small request and it's just one line. Gayle



Dear God, I pray for a
cure for

cancer.. Amen


From: ELIZABETH PEEPLES <peeples_e@bellsouth.net>
Date: October 23, 2012 12:52:05 PM EDT
To: Susan Griffin <sgriffin@att.net>
Subject: Fw: Fwd: Fw: A small request and  it's just one line. Gayle

Dear Susan, This is from my first cousin who is now in remission from breast cancer and I do want to keep it going and maybe you have the address of one of our beloved DAR's who have beaten this.
 


Monday is world cancer day...I'd appreciate it

if you would forward this request.

A small request and it's just one line. Gayle



Dear God, I pray for a
cure for cancer.. Amen

All you are asked to do is keep this circulating, even

if only to one more person. In memory of anyone you
know who has been struck by cancer or is still living with it.

A Candle Loses Nothing by Lighting Another Candle..
Please Keep
This Candle
Going..


 
,


All you are asked to do is keep this circulating, even

if only to one more person. In memory of anyone you
know who has been struck by cancer or is still living with it.

A Candle Loses Nothing by Lighting Another Candle..
Please
This Candle
Going..


 
,

Friday, October 12, 2012

Stages of Breast Cancer, Tai Chi and those darn leaves.

Happy Friday Everyone, The sun is shining on the green hills of Kentucky. The trees are turning wonderful shades of orange, red and gold. Those  lost leaves will soon create a carpet, first in our front yard, once we get all of those leaves raked the two very large/ old oak trees will loose their treasured leaves.  (as Peter would say "sigh") Those beautiful shade trees  will leave several hours of work for Peter!


As I travel my recovery path - I am returning to Tai Chi ( my original plan was to do this  2 weeks after my mastectomys) Well, that just did not happen!  Now eight months later I am focusing on Tai Chi. This is a great video, Tia Chi  brings wonderful energy to you - something you can actrually  feel as you say good bye to negative feelings, thoughts and such.

 I am knitting a new pair of socks and my hair is still growing.  I feel good:)
Wishing peace and love to all!


By Mayo Clinic staff
Illustration of tissues in breast

Stages of breast cancer


The extent, or stage, of your breast cancer gives your doctor an idea of your prognosis — the likely outcome of your disease — and helps guide treatment decisions.
Your doctor determines your stage of breast cancer through examination of the tissue removed during a mastectomy or lumpectomy and of the lymph nodes under your arm.
Your breast cancer stage takes into account how large your cancer is and whether it has spread beyond your breast. Using this information, your doctor assigns a Roman numeral — I through IV — that describes your breast cancer stage.
Double click next slide will take you to article. (I hope)
Next slide

  • Images

Monday, October 1, 2012

Marching Forward with postive energy! I Have Hair (some hair), Post Chem updates.



Hello Everyone:) Some after chemo thoughts. I think I mentioned before that I have had to deal with some depression, after my reconstruction surgery. The thing was it took me a while to understand that I was depressed. When you do not want to get off the couch, walk talk, eat - even the feeling of helpless. Those of you that know me, understand  this description is  really the opposite of my normal self.   Here are some signs of depression :
Depression symptoms include:
  • Feelings of sadness or unhappiness
  • Irritability or frustration, even over small matters
  • Loss of interest or pleasure in normal activities
  • Reduced sex drive
  • Insomnia or excessive sleeping
  • Changes in appetite — depression often causes decreased appetite and weight loss, but in some people it causes increased cravings for food and weight gain
  • Agitation or restlessness — for example, pacing, hand-wringing or an inability to sit still
  • Irritability or angry outbursts
  • Slowed thinking, speaking or body movements
  • Indecisiveness, distractibility and decreased concentration
  • Fatigue, tiredness and loss of energy — even small tasks may seem to require a lot of effort
  • Feelings of worthlessness or guilt, fixating on past failures or blaming yourself when things aren't going right
  • Trouble thinking, concentrating, making decisions and remembering things
  • Frequent thoughts of death, dying or suicide
  • Crying spells for no apparent reason
  • Unexplained physical problems, such as back pain or headaches
When I realized depression had settled in I called my family Dr. she increase  the dose of the anti depression I was taking. After a few days I was feeling much better. The lesson I have learned is reach out to others make a phone call , you do not to have to live with these over whelming feelings. Never feel like you are bothering your Doctor.  You just simple have to do it! Depression tries to creep back in, I am wiser now  and will not let it take over my daily life!
~~~~~~~~~~~~~~~~~~~~
Today I saw Dr. Bhandari for my  two month checkup - he is doubling my dose of Tamoxifen for the next two months, I am tolerating  Tamoxifen well :)  However I will not be taking it for five years. IN December he will be introducing me to a new estrogen blocker. I will stop the Tamoxifen. Of course I can not remember the name of the new drug! LOL There is a new study out that shows the newer drug is more effective in preventing re occurrence of breast cancer. I asked him about re-occurrence.  He said it could come back, it could come back any where in my body.  How do you know if it comes back? He will check my blood work every six months, blood count is important, He also wants to know if I develop any pain that does not go away.  I am now aware of  the fact that cancer does not just go away. Chemo kills the current cancer but does not stop it from coming back. As I walk this path "living with cancer"  I truly under stand the meaning of early detection. This is breast cancer awareness , make sure please please  you get you mammogram/ ultra sounds and you check ups.
I will continue  to try and make a difference any way I can. If someone needs help  on their journey I will be available.Reaching out to others is my therapy

Chemo Brain - OMG it is very hard to carry on a normal conversation. It takes a while to pull out of my brain what I am trying to say. I have discovered this is normal! I am going to let Idelle Davidson explain it for me. hehe I have some pictures to post but I can not figure out how to post  them.  I will get Peter to help !
 


Nine months post-chemo I went on a trip with girlfriends and could barely focus on a conversation or events. I dreaded going because I knew I was not myself. Then at night I would cry ALOT which was very unlike me. The post-chemo was far worse than actual chemo for me. It all just hit me and never left. I was going on job interviews, talking to recruiters because I had to, but looking back I was messed up.

I am two years from diagnosis this month and I finally feel like myself. I would say the fog has lifted 90%. The tamoxifen seems to have no effect on anything for me, thankfully.

The most telling part of my chemo fog, is when reading your book how long it took me to remember where I put my paperwork so I knew what chemo drugs I took (cytoxan and docetaxel)!

ourbrainafterchemo.blogspot.com/2010/01/breast-cancer-at-38-with-fog-depression.html


Welcome to My Blog

Welcome to My Blog
Idelle Davidson is an award-winning journalist, a breast cancer survivor, and the recipient of the 2009 Pillar of Strength Award from the



Wednesday, September 12, 2012


From: MORAGAJO@aol.com
Date: September 11, 2012 7:25:23 PM EDT
To: susanpi@aol.com
Subject: (no subject)
So glad the trip was a success and the storm didn't mess it up for you as I was thinking about that.
When I first heard about your journey back to good health it seemed like it would take forever and I'm sure it felt that way at times to you.  Now it is over and I love your smile and attitude that pulled you through.
 
Now the rest of your life begins - enjoy.    Josie

Shell Island

 Dana Dearwater, Cheryl Matthews, Me  - yes I do have a beer and it is a glass bottle,  on the beach!
 My older brother Tom:)

False Promises on Ovarian Cancer

(Note : I would like to know who was on this panel that have come to this conclusion. If the test saves one life it is worth having)  You can  appear healthy and still have cancer. We need to use all the tools/testing that is available!  Early detection can save your life! 
Susan



New evidence that women are more likely to be harmed than helped by screening tests for ovarian cancer is disturbing. The tests do nothing to prevent healthy women from dying from the usually fatal disease. Yet they often lead doctors to perform needless surgeries that cause serious complications in many patients.
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Connect With Us on Twitter

For Op-Ed, follow @nytopinion and to hear from the editorial page editor, Andrew Rosenthal, follow @andyrNYT.
The judgment from the United States Preventive Services Task Force, issued on Monday, updates its longstanding verdict that healthy women with an average risk of ovarian cancer should not be screened for the disease. The task force, 16 federally appointed experts, makes recommendations on which screening tests work and which don’t. The American Cancer Society and the American Congress of Obstetricians and Gynecologists have also discouraged the use of screening tests for ovarian cancer in most women.
Such advice does not apply to women who have genetic mutations or a family history that puts them at high risk or to women who have suspicious symptoms, like persistent bloating and pelvic or abdominal pain, symptoms that are not unique to ovarian cancer.
The task force relied heavily on a large study published last year of 78,000 women ages 55 to 74, half of whom were screened with ultrasounds and blood tests for a biological marker of ovarian cancer, and half of whom were not. After following them for 11 to 13 years, the death rate from ovarian cancer was the same in both groups. But nearly 10 percent of those screened, more than 3,200 women, had false-positive results and more than 1,000 of them had surgery, usually to remove one or both ovaries. Many of them had serious complications, such as surgical injuries to other organs, infections and blood clots.
As Denise Grady pointed out in The Times on Tuesday, the problem with the tests is that the biological marker being measured (CA-125) can be elevated by conditions other than cancer and the ultrasounds can reveal benign cysts that cannot be distinguished from cancer without surgery to remove the ovary.
Despite the expert advice against routine screening, a survey of 1,000 doctors published in February found that a third of them believed that screening was effective and many offered it to patients. Many patients request screening, believing that it can find the disease early enough to save lives. It is long past time for doctors and their patients to recognize that this assumption is wrong.

Tuesday, September 11, 2012

Pictures From The Beach

Sunset on Panama City Beach! The tropical storm/hurricane  did not keep us from going to the beach. We had 10 days of celebrating my recovery. My strength is finally returning  we had a great time!
http://www.yelp.com/biz/limes-dockside-bar-and-grill-panama-city
Sunset
Mike Jackson, my friend Kathy's son was our Captain. He is a great sport he is brave enough to go with us on our annual "girl's trip". He shows his humor  while dealing with his Mother and her awesome friends. He also tells stories about his adventures with us, mostly about Kathy who  is lots of fun when she has a few cocktails.

Tom Ward & Clyde Akard
I think they were thinking omg what have we gotten our selves into with all these crazy women.

Monday, August 27, 2012

My Dog Sugar, My New Hair

video
I have never uploaded a video before so I hope this works. My walking companion is my dog Sugar. ( thou I would like my hubby Peter to be my walking companion) Sugar is a very smart dog, she knows everything you say to her. she can find all her many toys by name, she also knows that when we go for a walk she has to pre~poop in the back yard. I gather our walking tools like the leash and keys we go outside and I tell her to go poop ! Here is what happens. She is a hoot!

I know my brother Tom is anxious to see my new hair do....I want Tom and Clyde to be able to recognize me at the airport on Thursday. My hair is growing, I am not sure what color it is. My red hair is gone, I know it cannot possible be gray. At least it is growing some of it is dark !


Friday, August 24, 2012

Another opnion about Tamoxifen ~ Very Funny

Thursday, June 3, 2010

More on Tamoxifen Side Effects

In a previous post, I shared with you that I was experiencing a little tamoxifen rage, euphemistically called "mood swings" by my oncologist.

Let's describe some of the other side effects that have popped up since then, shall we?

Along with the aforementioned tamox-rage, I also seem to be experiencing the inability to, shall we say, STFU. I don't know what's happened, but I've turned into that little old lady who says whatever the hell is on her mind without regard to how anybody else is going to take it. My thoughts come straight out of my mouth, without any stoppage. That might be cute, even admirable, when you are 95 and non-threatening in every other way. Hearing granny say, "Hey you fucking kids, get off my lawn" is cute.

Hearing your school secretary say it? Not so much.

Speaking of a little old lady, a few months ago I was a vibrant middle-aged woman who looked younger than her age. Now, I'm a hag. Literally. The skin is starting to hang off my bones. My arms look like they are melting. The tamoxifen is sucking me dry, and I've even gotten an (ahem) lady infection.

I've aged ten years in two months and am afraid to see what will happen in another two. I used to look at old-fashioned, 50's era photos of women my age and feel pity. They dressed like old ladies, they looked like old ladies. You know that your grandma, when she was my age, was wearing sensible shoes and a baggy housedress and baking cookies. Not me. I was glad to live in this age of Kim Catrell where I could still wear 3 inch rise jeans and five inch heels and eat salads with my girls. I now can't wear heels (more on that later) and I am seriously considering a pair of elastic waist jeans.

The tamoxofin may be sucking me dry, but it's also making me sweat. The hot flashes are not really flashes of heat; what a misnomer that phrase is! I just don't feel hot - instead, my brain seems to have a complete inability to regulate my body temperature. One second I'm freezing to death (and it's 80 degrees outside) and the next second I am boiling and sweating. I've never been a sweater so it's very disconcerting to find sweat running down my plastic cleavage (and my shins, and my forearms). All day long, every 15 minutes, I switch from boiling to freezing. One second I'm huddled in a blanket and the next second I'm ripping off my shirt. (Oh, THAT'S why it's called flashes!) It's like season five on Lost, where you flash from year to year uncontrollably. Only, without Josh Holloway.

Because of tamoxifen, my poor brain won't regulate my mouth or my temperature.

Why can't I wear heels, you ask? You know how I love them. Well, I ache. I ache all over. I ache from head to toe. My bones hurt. My hips hurt. Walking in heels makes my hip bones feel like they are rubbing up against each other. Even my ribs hurt.

The muscles around my bones hurt and my back really hurts. I have one spot in my back that is particularly painful, and that seems to be the part of the spine that holds you upright. So, sitting and standing - hurts. The pain is like those growing pains you had when you were a kid - you remember lying in bed and feeling that deep, horrible ache? And, your mom would put a towel in hot water to warm it up and wrap it around your legs? I have that everywhere, all day long.

I take a hot bath each morning to ease the pain and get my muscles loose enough to move. I am still on part-time hours at work precisely because it takes me so long to move in the morning. I fear for the day I have to leave the house at 6:30 a.m.

Getting up won't be a problem though, because I can't sleep. Who needs sleep anyway? Certainly, my cat is happy with my insomnia because she gets to be petted all night. I'm sometimes so tired I fall asleep after dinner but even then, I can't get a real nap in. I wake up in ten minutes like I had a night's worth of sleep and then, you guessed it, it's hard to get to sleep at bedtime. If I do sleep, it's in brief increments and I wake up throughout the night, typically when I try to rollover and all the sheets are stuck to me because I've sweated through them.

I can't shut up, regulate my body temperature, or sleep and I hurt all over. Thank you, Tamoxifen.

Tamoxifin is an anti-cancer drug given to pre-menopausal women. It is an estrogen blocker. My cancer "feeds" on estrogen and this medicine takes away the ability of any remaining cancer cells to grow. I am supposed to take it for five years.

I can tell you after two months, that I won't make it those five years. Something is going to have to change. Dr. B, you are warned. 

Link to blog: 

Tuesday, August 21, 2012

Fighting cancer is like a giant game of Mother May I. There are times when you take a  few steps forward and than a few steps back.  This is so true. I have taken a giant leap forward. I am feeling good. I have been driving and I helped Peter in the yard today. The yard though it is small has been a challenge this year. It takes a lot of work. Peter has been repairing our stone walls in front of the house. He is  strong and lugs the rocks and cement around with ease.  We will be heading to the beach and enjoy life  with our friends and family - It has been a long year.   This will be a celebration for both of us. The cancer walk is moving behind us.
 A good thing:) This is the deck garden. tomato plant is not doing well.


Wilma sleeps in a picture frame right next to our bed, on my side. She loves the frame.

Wednesday, August 15, 2012

My Hair is growing


Hi Everybody, Sorry I have ignored my own blog. ha ha  Here is a quick update.
After the reconstruction surgery. I  had a reaction or injury to my mouth. This included pain, bruising, swelling, my taste buds and appetite.  I think this happened because who ever was in charge of the items they put in your mouth was not very careful.  Otherwise the surgery went well. Very little recovery time. When they took the expander s out my leg pain departed also :) A very good thing. My new breast/boobs look marvelous!

 However, this is  not a good thing  - I have had  to deal with depression, serious depression. It appears this is common after a battle with cancer. As you start your journey towards being a cancer survivor. One more thing the  Dr's should discuss with their patients.
My attitude  was -  great this is all behind me - everything is awesome! However that did not happen, I had no energy, appetite, was not sleeping, hot flashes, lack of interest in anything - At first I attributed this to the aftermath of the last surgery and all the trauma my body  has gone through. Plus the start of my oral medication.
"Tamoxifen".  Depression kind of creeps up on you. I went from I can do this to I do not want to do this. After a few weeks I called my family Dr. a nice anti depressant  is helping.   I am a strong woman and look forward to a long and happy life.

What is tamoxifen?  I hope you never have to take this type of drug. I will be on this for 5 years :(

Tamoxifen blocks the actions of estrogen, a female hormone. Certain types of breast cancer require estrogen to grow.
Tamoxifen is used to treat some types of breast cancer in men and women. Tamoxifen is also used to lower a woman's chance of developing breast cancer if she has a high risk (such as a family history of breast cancer).
side effects may include:
  • hot flashes;
  • bone pain, joint pain, or tumor pain;
  • swelling in your hands or feet;
  • vaginal itching or dryness;
  • loss of appetite
  • headache, dizziness, depression; or
  • thinning hair.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Peter has retired and we are hanging out together, we are heading to Panama Beach , Florida. We will be celebrating my recovery with our best friends and my brother Tom and bother in law Clyde.  What could be better than partying at the beach.

    MY hair is growing!
     Thank you reading my blog.  I hope this information will help others and their families who may travel a similar journey. Peace and love to all:)



With Mayo Clinic nurse educator Sheryl M. Ness, R.N.
A personalized approach is best as men consider the benefits and risks of PSA screening for prostate cancer.
Gene expression profiling for breast cancer: What is it?
Gene expression profiling is a treatment-planning tool designed to help predict whether early-stage breast cancer will return after initial treatment.

Advise for "older patients" that develop breast cancer




http://www.about.com/?nl=1












http://breastcancer.about.com/bio/Pam-Stephan-18869.htm?nl=1
From Pam Stephan, your Guide to Breast Cancer
When a breast tumor is small and hasn't shed any cells, it may be early stage and very treatable. Many older patients are treated with lumpectomy and hormone therapy alone. But is that good enough?

Post-Lumpectomy Radiation Prevents Recurrence and Mastectomy
Women who are 70 and over with early-stage breast cancer aren't always offered the full array of treatments to prevent recurrence. A new study shows that those who had lumpectomy and radiation fared better than those who had surgery only. Are standards about to change again?
See More About:  lumpectomy  radiation  early stage
Lumpectomy - Surgery for Breast Cancer
A lumpectomy is done to remove just the tumor and a small margin of tissue around it. Your breast may have a dimple or a "dent" in it afterwards, but you will still have a breast. Learn what to expect from a lumpectomy.
10 Radiation Treatment Myths
Only in comic books do people get exposed to radiation and then become either: gross monsters or fabulous superheroes. Medical radiation for cancer isn't perfect, but it can help prevent a recurrence. Here's what a radiologist has to say.
Hormonal Treatments for Breast Cancer
An overwhelming number of breast cancer tumors are fueled by hormones. In order to reduce the risk of your cancer coming back, your oncologist will prescribe 5 years of hormonal treatments. These drugs are just about the exact opposite of hormone replacement therapy - they will lower your hormone levels to starve any leftover cancer cells. But not all these drugs work just alike.

Thursday, July 26, 2012

Live By Inspiring Others To Fly

"Live By Inspiring Others To Fly" 

 I feel like I am ready to fly, the surgery is over and went well. It was a different experience as it was done at St Elizabeth's Surgical Center. This was a small setting, like going to the Doctors office. I had to be there at noon with the surgery scheduled for 1:30 pm.. Lots of different types of people in the waiting room;) and a soap opera on the TV  along with a lot of storm warnings ~ I admit the thought ran through my hairless head ~ gosh what would happen if they loose power here in the middle of my surgery. They were mentioning 60 mph  winds. Someone from the operating area came out to see what the television was saying  about the weather. Oh my!


They started a bit late, Peter had to go back to the waiting room.  When I woke up I had no idea where  I was and I was very cold.  They were trying to warm me up with warm blankets. ( at least the electric did not go out) . I was in the recovery room, which was two feet away from the holding room. I asked a couble of times  for Peter and they said he could come back after I got out of the recovery area. They were concerned that I had a rash on my face and I was cold. So two hours later I woke up - again and I am still in the recovery area. The nurse told me that they were waiting for Dr Williams  ( who is in pratice with my Dr.) to look at this rash on my face. OK. He eventually came out and  said I was fine.


Suddenly they wheeled in another patient. She was very bubbly and had just  had her breast done.
She wanted to know what kind of surgery I had. So I told her and she exclaimed "that's what I had done, what size did you get" ! LOL  I told her I had no idea as I had just woken up.  That was priceless!

I am ready to fly, fly to the beach in  Florida!










Friday, July 20, 2012

Of course we do not have gray hair!

 Information on the growth of hair and the results after chemo. Of course we do not have gray hair!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
In a message dated 7/17/2012 8:42:14 P.M. Eastern Daylight Time, lnbstew@6thsensedesign.com writes:
Sue, Hi!! Well about the hair. Mine is still wavy in the back ands still very short. It is very dark and more gray hair than I have ever had, but i do get highlights now. Actually I am going tomorrow to get foiled. I refuse to have such dark hair. Need my highlights. It will take a while and it comes in curly. For someone who never had curly hair i kind of enjoyed it. It only lasts 1 year than it is straight again. I have heard of people with curly hair getting straight hair. You sound quite good. I have decided to go to San francisco in Sept. and stay with my Aunt for a couple of weeks. I have to take oxygen which is a Pain in the ass but they will not let me leave without it. I do not use it but doesn't matter. Looking forward to getting out of this heat. Should really be nice that time of year. When are you having surgery? I really admire you doing the reconstruction. I just can't imagine having it. I had two lumpectomys and that is enough. Take care.
Love, Linda
 

 
In a message dated 7/17/2012 2:38:13 P.M. Eastern Daylight Time, kc4nsicrn@aol.com writes:
Susan, I just read the great news! How wonderful! Wanted to let you know that my friend who lost her hair after chemo, had very curly hair when it came back. God leads us to the right path, huh? wow, prayers worked.

Karen Chabert,
504-891-6293 Phone/Fax
504-343-9095 Cell Phone

Tuesday, July 17, 2012

New Breasts and New Hair are on the Horizion

Hello Everyone! 
It is hot in Cincinnati/Northern KY
I am finally feeling better! I was beginning to think I was just going to turn into an inactive boring aging  elder woman. I am five weeks and 2 days  out of chemo! My chemo days are a thing of the past and I am moving forward  on new life paths. I still have not made it to working in the yard ~ we are having a drought and another heat wave. I am getting bored.


My blood work is good and my bones are actually stronger that they were a year ago. Thank you to the horrid bone marrow shots I had to have after each round of chemo.


Tuesday  July 24, 2012 - I am having the expanders removed and my reconstruction surgery:)  I can not wait to get this done! I feel like I have rocks on my chest. Good bye to the expanders  which are tied to my ribs and full of sterile  solution . The surgical procedure is done as an out patient procedure - a fairly simple surgery. I THINK!  Of course this involves all the pre-surgery things that I have to do. A  pre-surgery physical with my family Dr. and an EKG. Another visit to Dr Vashi (plastic surgeon) - who I just saw last week. Than the pre- physical they give you at the hospital . The best thing is I will have my new breasts and they will be perfect and soft! I will be healed  for my trip to the beach:)


My hair is kind of interesting - I have a few bits of white fuzz on top of my head. I have heard all kinds of stories about the regrowth of after chemo hair. My oncologist Dr. Bhandari- commented the fuzz I have is just the first growth of hair  eventually I will have a second growth of hair. How long does this take? A few years! Usually the hair comes in curly ( I guess the hair follicles are damaged and the hair grows crooked) It also changes color - somethings it comes in red or different colors. Well, this white stuff is going to make me look like a  Q-tip. I anticipate by fall I will be wearing my wig! Gray hair is not my style.

Thanks for following my journey. Remember early detection saves lives! As we age we need to follow Dr's orders - mammograms and colonoscopy's are a must!


xoxox
Susan

The American Cancer Society “Guidelines for the Early Detection of Cancer” recommend, beginning at age 50, both men and women follow f these testing schedules for screening to find colon polyps and cancer: 1. Flexible  Colonoscopy    every 5 years.


My new hair!




Tissue expanders - these will be gone next week yayayaya



Sunday, July 8, 2012

DR.Wartman's story. Glimpses of research and genetic linked cancer


Happy Sunday 

July 8, 2012

Robin my nephew Micheal's wife ( so my niece)  who suffers from leukemia, is in her second remission, her Dr's are at OH State Hospital. She is doing great! This is a glimpse into what is happening in the world of research. Some of these genes  begin to  grow and multiply quickly. My cancer was driven by estrogen and there is some suspect  of the  p52 gene  which may be responsible  for this estrogen invading my body. 

I have posted this article on Facebook ~ this is a major break through in genetics and the link to cancer. This is a lot to read but it is important. My Dr. wants me to get into a genetic program at a research hospital, he has mentioned OH State and the University of Michigan. I see him tomorrow and I am taking him a copy of this report. 

It is still so hot out, high of 95 degrees beats 105! Still to hot to do much of anything.  Impossible to work in the yard. We are hoping for rain without major thunder storms that could knock our power out! We have lots of very old trees that topple in such storms. SO I am crossing my fingers for simple rain.

I feel a bit better everyday~ my legs still hurt ~ guess I will find out tomorrow what the leg discomfort is about .  This morning I did drive to the drug store and stopped and got some fruit and salad from the salad bar at Remkes Market. The first time I have driven since my trip to Krogers LOL and their salad bar:) I ave been knitting and spinning some yarn.

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In Treatment for Leukemia, Glimpses of the Future

Second Chance: Lukas Wartman, a leukemia doctor and researcher, developed the disease himself. Facing death, his colleagues sequenced his cancer genome. The result was a totally unexpected treatment.
ST. LOUIS — Genetics researchers at Washington University, one of the world’s leading centers for work on the human genome, were devastated. Dr. Lukas Wartman, a young, talented and beloved colleague, had the very cancer he had devoted his career to studying. He was deteriorating fast. No known treatment could save him. And no one, to their knowledge, had ever investigated the complete genetic makeup of a cancer like his.
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Dilip Vishwanat for The New York Times
Dr. Lukas Wartman, a leukemia patient in remission, being examined by his doctor, John DiPersio, in January in St. Louis.

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So one day last July, Dr. Timothy Ley, associate director of the university’s genome institute, summoned his team. Why not throw everything we have at seeing if we can find a rogue gene spurring Dr. Wartman’s cancer, adult acute lymphoblastic leukemia, he asked? “It’s now or never,” he recalled telling them. “We will only get one shot.”
Dr. Ley’s team tried a type of analysis that they had never done before. They fully sequenced the genes of both his cancer cells and healthy cells for comparison, and at the same time analyzed his RNA, a close chemical cousin to DNA, for clues to what his genes were doing.
The researchers on the project put other work aside for weeks, running one of the university’s 26 sequencing machines and supercomputer around the clock. And they found a culprit — a normal gene that was in overdrive, churning out huge amounts of a protein that appeared to be spurring the cancer’s growth.
Even better, there was a promising new drug that might shut down the malfunctioning gene — a drug that had been tested and approved only for advanced kidney cancer. Dr. Wartman became the first person ever to take it for leukemia.
And now, against all odds, his cancer is in remission and has been since last fall.
While no one can say that Dr. Wartman is cured, after facing certain death last fall, he is alive and doing well. Dr. Wartman is a pioneer in a new approach to stopping cancer. What is important, medical researchers say, is the genes that drive a cancer, not the tissue or organ — liver or brain, bone marrow, blood or colon — where the cancer originates.
One woman’s breast cancer may have different genetic drivers from another woman’s and, in fact, may have more in common with prostate cancer in a man or another patient’s lung cancer.
Under this new approach, researchers expect that treatment will be tailored to an individual tumor’s mutations, with drugs, eventually, that hit several key aberrant genes at once. The cocktails of medicines would be analogous to H.I.V. treatment, which uses several different drugs at once to strike the virus in a number of critical areas.
Researchers differ about how soon the method, known as whole genome sequencing, will be generally available and paid for by insurance — estimates range from a few years to a decade or so. But they believe that it has enormous promise, though it has not yet cured anyone.
With a steep drop in the costs of sequencing and an explosion of research on genes, medical experts expect that genetic analyses of cancers will become routine. Just as pathologists do blood cultures to decide which antibiotics will stop a patient’s bacterial infection, so will genome sequencing determine which drugs might stop a cancer.
“Until you know what is driving a patient’s cancer, you really don’t have any chance of getting it right,” Dr. Ley said. “For the past 40 years, we have been sending generals into battle without a map of the battlefield. What we are doing now is building the map.”
Large drug companies and small biotechs are jumping in, starting to test drugs that attack a gene rather than a tumor type.
Leading cancer researchers are starting companies to find genes that might be causing an individual’s cancer to grow, to analyze genetic data and to find and test new drugs directed against these genetic targets. Leading venture capital firms are involved.
For now, whole genome sequencing is in its infancy and dauntingly complex. The gene sequences are only the start — they come in billions of small pieces, like a huge jigsaw puzzle. The arduous job is to figure out which mutations are important, a task that requires skill, experience and instincts.
So far, most who have chosen this path are wealthy and well connected. When Steve Jobs had exhausted other options to combat pancreatic cancer, he consulted doctors who coordinated his genetic sequencing and analysis. It cost him $100,000, according to his biographer. The writer Christopher Hitchens went to the head of the National Institutes of Health, Dr. Francis Collins, who advised him on where to get a genetic analysis of his esophageal cancer.
Harvard Medical School expects eventually to offer whole genome sequencing to help cancer patients identify treatments, said Heidi L. Rehm, who heads the molecular medicine laboratory at Harvard’s Partners Healthcare Center for Personalized Genetic Medicine. But later this year, Partners will take a more modest step, offering whole genome sequencing to patients with a suspected hereditary disorder in hopes of identifying mutations that might be causing the disease.
Whole genome sequencing of the type that Dr. Wartman had, Dr. Rehm added, “is a whole other level of complexity.”
Dr. Wartman was included by his colleagues in a research study, and his genetic analysis was paid for by the university and research grants. Such opportunities are not available to most patients, but Dr. Ley noted that the group had done such an analysis for another patient the year before and that no patients were being neglected because of the urgent work to figure out Dr. Wartman’s cancer.
“The precedent for moving quickly on a sample to make a key decision was already established,” Dr. Ley said.