Monday, May 20, 2013

Good News and Some Concerned

May 20, 2013

Good News and some concerned News

We  spent last weekend in Nashville at a wedding of Chris and Toni Deamon. It was fabulous  to  have some fun time with our Tennessee family.
On our way home we stopped at Tootsies Bar where Peter and I met 13 years ago, we celebrated our 12 anniversary. We had a great time and headed home very happy.

Monday morning Peter and I set off to UC  ( University Hospital of Cincinnati) for my brain and brain stem MRI.
We got out of the car Peter and I disagreed on how to get to the correct department. I got there first:) I asked for directions and got to walk through the old tunnels of the hospital. I saw all kinds of things like in  a horror movie where they put you in the Looney bin.. Peter finally found me!
Off  I went for these scans. I laid on  the scan table actually it was a brand new piece of equipment. A good thing. So in order to do this they had to start an IV and test my blood . No problem. At this point I am strapped down - I have ear plug and something like ear muffs over my ears and a mask of some sort . I could not move , I am certain I had the same mask on that they used on Hannibal Lector.
I could not move  - there was even a bar across my eyes.!

So they started the test  filled my veins with that magic potion that makes you glow. They pushed me inside the tube  and started with all these different  beeping sound. About half way through this hour procedure   they stopped. I was still in lock down. MY VEIN HAD MOVED.  They could not get my blood to flow.. I suggested they us a smaller needle.  Eventually they did use a smaller needle and we proceed and finished the test.

Three days went by and  Dr. Curry called me  (red flag time) The good news no sign of a stroke or cancer:) The not so good news is I have large mass of fluid around my brain, Did you know that there is some fluid always around our brains and as we age this fluid increases. My fluid  is as much as a woman over 85 should have.. YIKEES I did not like hearing this. They will have to do what they call a needle lumbar puncture to drain this. ( it use to be called a spinal tap) This should take place within a week.

Now, we know the reason  I am shaking , loosing my balance, falling and taking like I have had a stroke. This fluid is putting pressure on my brain. 

Dr. Curry just called me (did I tell you he looks like Peter Frampton?) The 50 year old Peter.
He went over what is happening and to tell me he  has an appointment tonight  with Dr. Bandari ( my other oncologist )  to discuss his findings.. I asked him if this is life threating he said "no".  There is also a medication to control the pressure if needed. This should be a piece of cake, compared to everything I went through in 2012.

 I feel great I have so much energy, other then the shaking which  effects with my typing being  horrid. I am blessed with lots of great energy. So what if my brain is scrambled - it will be fixed.

The girls and I are going to the beach  the end of July  to celebrate my Birthday and to say good bye to all this crap. Than we will go to the beach again for our annual labor day  vacation.
.Tom and Clyde  we hope you will be able to join us.
 xoxo thanks for reading my blog, thanks for the continued support, I love all of you

No one saves us but ourselves,
 No one can and no one may,
We ourselves must walk the path.

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