Thursday, April 4, 2013

Genetic Cancer - Out with my girl friends

THIS WEEK'S TOP STORY http://tracking.waterfrontmedia.com/nlsclick/t.aspx?k=204&d=2013/04/04&e=susanpi@aol.com&utp=&rd=http://www.mayoclinic.com/health/2013-living-with-cancer-conference-v ideo/MY02412/?utm_source=newsletter~amp~utm_medium=email~amp~utm_campaign=living-with-cancer~amp~pubDate=04/04/2013
Living with Cancer patient conference videos available
Find out about inheriting cancer, the environment and cancer, pancreatic cancer, alternative cancer therapies and more.
Always tell all your Doctors about any cancer in your family,including skin leasions and polyps. Precancer = future cancer, if not treated. Send an email to your relatives, you might be surprised at what you find.
 
Susan xo
 
 
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Opening Day 2013
 


We had a great time "watching" (ha ha) the Reds playing the Angels.We met for lunch/ to get a table at  2 0' clock at  Game started at 4 0' clock  The game lasted for over- 10 innings. We eventually  left Newport On The Levy and headed to our favorite blues club Mansion Hill. Just like we were still in our 40's we kept going..I had some chili - the game was still on, so the band was not playing:(

 The four of us are in our fifty and sixty's - we chose to miss the band, it was afte 8 0'clock pm. So it was time to wake Peter up from his napping. He came to get me and filled me in on the Jodi Arias trial.
It was a great day! It was wonderful to be out and about  with my girl friends and not be tired. Peter missed all the fun.

 

Thursday, March 28, 2013

Get to know the emotions that are common for cancer survivors

Hello Everyone. It is Spring and I am doing great. I had a full bone body scan and no signs of cancer! A great report. I am on a different medication,  I am now taking  Arimidex. A recent study shows this is the best prevntive cancer  drug for woman that are post menopausal. This a good thing.
 I am not sure when they start counting the five year recovery mark. I completed the chemo eight months ago and I see Dr. Bandari every four months So it has been almost a year! Moving forward down the living with cancer life path with a smile and postive energy.

 Cincinnati Red's oppening day is Monday! Hopefully it will be warm enough and not raining so we can hang out with other Red's fans:)

Have a great day!


Managing your emotions after cancer treatment. This is an excellent article from the Mayo Clinic

Get to know the emotions that are common for cancer survivors and how to manage your feelings. Find out what's normal and what indicates you should consider getting help.

Living With Cancer


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When you began your cancer treatment, you couldn't wait for the day you'd finish. But now that you've completed your treatment, you aren't sure if you're ready for life after treatment as a cancer survivor. With your treatment completed, you'll likely see your cancer care team less often. Though you, your friends and your family are all eager to return to a more normal life, it can be scary to leave the protective cocoon of doctors and nurses who supported you through treatment.
Everything you're feeling right now is normal for cancer survivors. Recovering from cancer treatment isn't just about your body — it's also about healing your mind. So take time to acknowledge the fear, grief and loneliness you're feeling right now. Then take steps to understand why you feel these emotions and what you can do about them.

Fear of recurrence in cancer survivors

Fear of recurrence is very common in cancer survivors. Though they may go years without any sign of disease, cancer survivors say the thought of recurrence is always with them. You might worry that every ache or pain is a sign of your cancer recurring. Eventually these fears will fade, though they may never go away completely.
Cope with your fear by being honest with yourself about your feelings. Try not to feel guilty about your feelings or ignore them in hopes that they'll go away. Ask your doctor about what you can do to reduce your chance of a cancer recurrence. Once you've done all you can to reduce that risk, acknowledge your fears. Take control of those fears and do what you can to influence your future health. Try to:
  • Take care of your body. Focus on keeping yourself healthy. Eat a healthy diet with plenty of fruits and vegetables. Fit exercise into your day. Go easy at first, but try to increase the intensity and amount of exercise you get as you recover. Get enough sleep so that you wake feeling refreshed. These actions may help your body recover from cancer treatment and also help put your mind at ease by giving you a greater sense of control over your life.
  • Go to all of your follow-up appointments. You may fear the worst when it's time for your next follow-up appointment. Don't let that stop you from going. Use the time with your doctor to ask questions about any signs or symptoms that worry you. Write down your concerns and discuss them at your next appointment. Ask about your risk of recurrence and what signs and symptoms to watch for. Knowing more may help you feel more in control.
  • Be open about your fears. Express your concerns to your friends, family, other cancer survivors, and your doctor or a counselor. If you're uncomfortable with the idea of discussing your fears, try recording your thoughts in a journal.
  • Keep busy. Get out of the house and find activities that will take your mind off your fears.
Most cancer survivors report that the fear of recurrence fades with time. But certain events can trigger your fears. The feelings might be especially strong before follow-up visits to your doctor or the anniversary of your cancer diagnosis.

Stress in cancer survivors

When you were diagnosed with cancer, you might have focused completely on your treatment and getting healthy. Now that you've completed treatment, all those projects around the house and the things on your to-do list are competing for your attention. This can make you feel stressed and overwhelmed.
Don't feel you need to do everything at once. Take time for yourself as you establish a new daily routine. Try exercising, talking with other survivors and taking time for activities you enjoy.

Depression and anxiety in cancer survivors

Lingering feelings of sadness and anger can interfere with your daily life. For many people these feelings will dissipate. But for others, these feelings can develop into depression.
Tell your doctor about your feelings. If needed, you can be referred to someone who can help you through talk therapy, medication or both. Early diagnosis and prompt treatment are keys to successfully overcoming depression.

Cancer survivors: Managing your emotions after cancer treatment

Self-consciousness in cancer survivors

If surgery or other treatment changed your appearance, you might feel self-conscious about your body. Changes in skin color, weight gain or loss, the loss of a limb, or the placement of an ostomy might make you feel like you'd rather stay home, away from other people. You might withdraw from friends and family. And self-consciousness can strain your relationship with your partner if you don't feel worthy of love or affection.
Take time to grieve. But also learn to focus on the ways cancer has made you a stronger person and realize that you're more than the scars that cancer has left behind. When you're more confident about your appearance, others will feel more comfortable around you.

Loneliness in cancer survivors

You might feel as if others can't understand what you've been through, which makes it hard to relate to other people and can lead to loneliness. Friends and family might be unsure of how to help you, and some people may even be afraid of you because you've had cancer.
Don't deal with loneliness on your own. Consider joining a support group with other cancer survivors who are having the same emotions you are. Contact your local chapter of the American Cancer Society for more information. Or try an online message board for cancer survivors, such as the American Cancer Society's Cancer Survivors Network.

Where to go for help

While experiencing any of these emotions is normal, that doesn't mean you have to do it alone. If you find that your feelings are overwhelming you or interfering with your everyday life, it's a good idea to consider getting some help.
Sometimes talking with friends or family can help. But you might feel like those people can't truly understand what you're going through if they haven't had cancer. You might consider consulting:
  • A therapist. Your doctor may be able to refer you to a professional who can help you sort through your emotions and come up with ways to deal with your feelings.
  • Other cancer survivors. Support groups, whether in your community or online, provide a great place to share your feelings and hear from others who are going through what you're experiencing. You can learn new ways of coping with fears.
Devise your own plan for coping with your emotions. You know what works best for you. Have an open mind and try different strategies to find out what works best for you.

Tuesday, December 11, 2012

My faithful watch dog



Hidden Message?

Hey Everybody

 A couple months ago - my watch dog was barking, her someone is here bark, I looked out and noticed that there was a pink semi parked next door. Than Someone knocked on my back door, disregarding Sugar's attempt to protect me.  A gray haired and bearded man had stopped by for a visit. He said you want to get rid of the VW car in the driveway? My response was no  I am saving it for my Grandson. He sort of wanted to make his point. You called me and said you wanted $150  for it and I am here to pick it up. My comment,  I did not call you, he said well someone did how else would I know you had the car.... I suggested maybe a prank call other wise I have no idea and if I was going to sell it would be for a lot more that $150 - the car is in good shape! He stood there for a few moments and looked at me and my bald head. Than he left.
 After a few days I realized I knew him. His name was Ken Kallmeyer. I knew him  from 30 years  ago. I worked at the bank in the collection department, which involved repoing cars. (long before the show repo man) Ken had a  towing business and we used him to pickup cars. Hmmm strange.
I was a bit concerned about this guy coming to my door with this made up story. A good reason to keep the doors locked.  However  I got over it. Out of site out of mind.

Now days we do not always see the obituaries, or at least I don't as I get all  my news on line. We get a little local paper "Kenton County Recorder". I happened to notice Ken's name - he had died. I had the strangest feeling when I saw this .  He was 71.  His wife had died previously and  the family requested donations to the The Susan G. Komen for the Cure, Breast Cancer Foundation, often referred to as simply Komen, which is the most widely known cancer foundation.
I think this explains why Ken had a pink semi truck, his wife died of breast cancer. Why did he wind up at my backdoor - I am not sure. I feel there was a hidden message, guess I will never know exactly. I think he wanted me to keep fighting not just for myself but also for others.. A great guy  and he drove around in a pink semi! Rest in peace Ken:)
 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Here is my health update. I feel great!. Last week I had one of those dreaded colonscopys. I had to cross my fingers and hope for the best - that worked everything was good. So I am good for another  five years. A very good thing. I still see my oncologist Dr Bandari every three months. I had a blood test yesterday. I meet with Dr Bandari  on the 17th. I see Dr. Michael Guenther (my surgical oncologist) ever six months. I have been taking the drug tamoxifen , I do know that there has been a recent study showing that there is another drug that is more effect that I will be taking soon. ( at blocking cancer cells) with post menopausal woman at high risk for reoccurrence. So everything is in control!   I am postive  life is good:) Peter and I are good. I am beating the crap out of this cancer!!!



 

Wednesday, October 24, 2012

World Cancer Day



Begin forwarded message:
From: ELIZABETH PEEPLES <peeples_e@bellsouth.net>
Date: October 23, 2012 12:52:05 PM EDT
To: Susan Griffin <sgriffin@att.net>
Subject: Fw: Fwd: Fw: A small request and  it's just one line. Gayle



Monday is world cancer day...I'd appreciate it

if you would forward this request.

A small request and it's just one line. Gayle



Dear God, I pray for a
cure for

cancer.. Amen


From: ELIZABETH PEEPLES <peeples_e@bellsouth.net>
Date: October 23, 2012 12:52:05 PM EDT
To: Susan Griffin <sgriffin@att.net>
Subject: Fw: Fwd: Fw: A small request and  it's just one line. Gayle

Dear Susan, This is from my first cousin who is now in remission from breast cancer and I do want to keep it going and maybe you have the address of one of our beloved DAR's who have beaten this.
 


Monday is world cancer day...I'd appreciate it

if you would forward this request.

A small request and it's just one line. Gayle



Dear God, I pray for a
cure for cancer.. Amen

All you are asked to do is keep this circulating, even

if only to one more person. In memory of anyone you
know who has been struck by cancer or is still living with it.

A Candle Loses Nothing by Lighting Another Candle..
Please Keep
This Candle
Going..


 
,


All you are asked to do is keep this circulating, even

if only to one more person. In memory of anyone you
know who has been struck by cancer or is still living with it.

A Candle Loses Nothing by Lighting Another Candle..
Please
This Candle
Going..


 
,

Friday, October 12, 2012

Stages of Breast Cancer, Tai Chi and those darn leaves.

Happy Friday Everyone, The sun is shining on the green hills of Kentucky. The trees are turning wonderful shades of orange, red and gold. Those  lost leaves will soon create a carpet, first in our front yard, once we get all of those leaves raked the two very large/ old oak trees will loose their treasured leaves.  (as Peter would say "sigh") Those beautiful shade trees  will leave several hours of work for Peter!


As I travel my recovery path - I am returning to Tai Chi ( my original plan was to do this  2 weeks after my mastectomys) Well, that just did not happen!  Now eight months later I am focusing on Tai Chi. This is a great video, Tia Chi  brings wonderful energy to you - something you can actrually  feel as you say good bye to negative feelings, thoughts and such.

 I am knitting a new pair of socks and my hair is still growing.  I feel good:)
Wishing peace and love to all!


By Mayo Clinic staff
Illustration of tissues in breast

Stages of breast cancer


The extent, or stage, of your breast cancer gives your doctor an idea of your prognosis — the likely outcome of your disease — and helps guide treatment decisions.
Your doctor determines your stage of breast cancer through examination of the tissue removed during a mastectomy or lumpectomy and of the lymph nodes under your arm.
Your breast cancer stage takes into account how large your cancer is and whether it has spread beyond your breast. Using this information, your doctor assigns a Roman numeral — I through IV — that describes your breast cancer stage.
Double click next slide will take you to article. (I hope)
Next slide

  • Images

Monday, October 1, 2012

Marching Forward with postive energy! I Have Hair (some hair), Post Chem updates.



Hello Everyone:) Some after chemo thoughts. I think I mentioned before that I have had to deal with some depression, after my reconstruction surgery. The thing was it took me a while to understand that I was depressed. When you do not want to get off the couch, walk talk, eat - even the feeling of helpless. Those of you that know me, understand  this description is  really the opposite of my normal self.   Here are some signs of depression :
Depression symptoms include:
  • Feelings of sadness or unhappiness
  • Irritability or frustration, even over small matters
  • Loss of interest or pleasure in normal activities
  • Reduced sex drive
  • Insomnia or excessive sleeping
  • Changes in appetite — depression often causes decreased appetite and weight loss, but in some people it causes increased cravings for food and weight gain
  • Agitation or restlessness — for example, pacing, hand-wringing or an inability to sit still
  • Irritability or angry outbursts
  • Slowed thinking, speaking or body movements
  • Indecisiveness, distractibility and decreased concentration
  • Fatigue, tiredness and loss of energy — even small tasks may seem to require a lot of effort
  • Feelings of worthlessness or guilt, fixating on past failures or blaming yourself when things aren't going right
  • Trouble thinking, concentrating, making decisions and remembering things
  • Frequent thoughts of death, dying or suicide
  • Crying spells for no apparent reason
  • Unexplained physical problems, such as back pain or headaches
When I realized depression had settled in I called my family Dr. she increase  the dose of the anti depression I was taking. After a few days I was feeling much better. The lesson I have learned is reach out to others make a phone call , you do not to have to live with these over whelming feelings. Never feel like you are bothering your Doctor.  You just simple have to do it! Depression tries to creep back in, I am wiser now  and will not let it take over my daily life!
~~~~~~~~~~~~~~~~~~~~
Today I saw Dr. Bhandari for my  two month checkup - he is doubling my dose of Tamoxifen for the next two months, I am tolerating  Tamoxifen well :)  However I will not be taking it for five years. IN December he will be introducing me to a new estrogen blocker. I will stop the Tamoxifen. Of course I can not remember the name of the new drug! LOL There is a new study out that shows the newer drug is more effective in preventing re occurrence of breast cancer. I asked him about re-occurrence.  He said it could come back, it could come back any where in my body.  How do you know if it comes back? He will check my blood work every six months, blood count is important, He also wants to know if I develop any pain that does not go away.  I am now aware of  the fact that cancer does not just go away. Chemo kills the current cancer but does not stop it from coming back. As I walk this path "living with cancer"  I truly under stand the meaning of early detection. This is breast cancer awareness , make sure please please  you get you mammogram/ ultra sounds and you check ups.
I will continue  to try and make a difference any way I can. If someone needs help  on their journey I will be available.Reaching out to others is my therapy

Chemo Brain - OMG it is very hard to carry on a normal conversation. It takes a while to pull out of my brain what I am trying to say. I have discovered this is normal! I am going to let Idelle Davidson explain it for me. hehe I have some pictures to post but I can not figure out how to post  them.  I will get Peter to help !
 


Nine months post-chemo I went on a trip with girlfriends and could barely focus on a conversation or events. I dreaded going because I knew I was not myself. Then at night I would cry ALOT which was very unlike me. The post-chemo was far worse than actual chemo for me. It all just hit me and never left. I was going on job interviews, talking to recruiters because I had to, but looking back I was messed up.

I am two years from diagnosis this month and I finally feel like myself. I would say the fog has lifted 90%. The tamoxifen seems to have no effect on anything for me, thankfully.

The most telling part of my chemo fog, is when reading your book how long it took me to remember where I put my paperwork so I knew what chemo drugs I took (cytoxan and docetaxel)!

ourbrainafterchemo.blogspot.com/2010/01/breast-cancer-at-38-with-fog-depression.html


Welcome to My Blog

Welcome to My Blog
Idelle Davidson is an award-winning journalist, a breast cancer survivor, and the recipient of the 2009 Pillar of Strength Award from the