Thursday, May 2, 2013

You got my attention!

April 29.2013

Today I went  to see my family Dr. - only because she told if I did not come in she would not refill my prescriptions. We all know how that goes,. Peter went with me and I had a list of two items to ask her about.

1. Why do my hands shake all the time -( I have assumed it is because of all the hell my body has been through)

2. That I thought I was having some rapid heart beats and tightness  in my chest ( I am not sure if that is spelled correctly)

She questioned me a bit than started looking at my eyes ,ears and throat. After the awww thing she stopped. She stated your tongue is even shaking, your whole body is shaking. She wanted to know how was I able to sleep at night! LOL Well, I did not know my body was shaking and I take drugs to sleep!  So what is wrong?  Not sure- likely the chemo. I have all the symptoms of  Parkinson disease, except I am not stiff. So she does not think that Parkinson's is the problem. I am certain that I do not have Parkinson's.   I am also having some trouble with my speech :(.

My heart sounded alright, she ran an EKG , which only takes 30 seconds and transfers immediately to my chart. Ok- unfortunately it was not alright.  This part did not surprise me. due to the radiation and Chemo, I knew it was possible.
 However I am an unlikely candidate for heart issues. I never smoked, I eat healthy, I try to exercise, I am 5'5" and 126 pounds.

 So within ten minutes I had an appointment for a stress test - with some nuclear dye  so they can look at all my heart and arteries. (DID YOU KNOW -95% of woman who die of  a heart attack have harding of the arteries, that are undiagnosed ) This was one of my , you got my attention moments!

In a very short period of time I find I have some type of  neurological problem and possibly heart disease. This can not be, I feel better than I have years.

So I have had the stress test, it was at 7:45 am with no coffee. I never am up that early, ever  let alone up and  running on a tread mill. OMG. I have an appointment with a Dr. Curry at the University of Cincinnati. He is a Neuroscience/oncology specialtist. This is scheduled  for May 8.

I feel good, I think this Dr. Curry  will help me as I take this  side journey. Believe me this will not get me down or make me fragile. I will be at Christopher  and  Toni's wedding on the 11th, at The Wild Turkey Ranch in Lebanon, Tennessee.

ucneuroscience.com/blog/dr-richard-curry-is-catalyst-for-new-neuro-o...
Sep 21, 2012 ... In his new clinics, Dr. Richard Curry, above, is helping patients who suffer ... 234 Goodman Street Cincinnati, OH 45219 | (866) 941-UCNI (8264) ... patients in these clinics at the Barrett Center at UC Health University Hospital.


http://ucneuroscience.com/blog/dr-richard-curry-is-catalyst-for-new-neuro-oncology-clinics/

Thank you for reading my blog:)  P.S. I feel great!
 

Thursday, April 25, 2013

facebook
http://www.facebook.com/n/?peter.deamon&mid=7c805ebG2f2ad48eG11c72d57Ge&bcode=1.1365117117.Abk6nNt13vfZC93-&n_m=susanpi@aol.com&lloc=image
Peter Deamon commented on your link.
Peter wrote: "You are my hero. I went through this journey as your partner and your confidant. I expected a broken dam of emotions from this journey but instead I witnessed strength, a focus on family and others in the same situation and a stature of "Class" that we could all hope to emulate in our hour of challenge or trial."

Wednesday, April 24, 2013

My Gray Hair

My BFs Kathy and Cheryl had a hair intervention with me my while we were all out together when we were out watching  the Reds on opening day.  Being a free spirit  I told them I did not care, but I would think about it <wink> A few days  ago  I updated my Face Book photo and was  blessed to get all of fabulous likes and  comments See  below. So far neither Kathy or Cheryl have responded to the e mail I sent them earlier to day. haha
----------------------------------------------------------------------------------------------------------------------
This is the email I sent

My hair is staying as is, Kathy and Cheryl I appreciate  your suggestions ( about becoming a red head and letting my hair grow so I don't look like I am gay) and ideas for a hair makeover
 However I like it this was and so do a lot of others. I get complements everyday:)    I am a new person I feel better than I have felt in years and I am Happy - :) I like my hair and I like my new love of good draft beer. XO I love all of you very much.
=============================================================================== 


Response from Kissy
You GO girl!!! I love it the way it is too!

Response from Sandy
Hey there,
Is that a response from comments on opening day or are they still giving
you shit?  I like it a lot and the one of the joys of aging is that we can
do, say or wear whatever we choose and tuff petunias to those who don't
like it.  Sandy

Response from Cheryl
Susan, I think you are very beautiful!!  You should do exactly what you want.  But if I were  XXXXX, I would want to sleep in your room at the beach.
Cheryl Mathews 


++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
On Wed, Apr 24, 2013 at 12:27 PM, <SUSANPI@aol.com> wrote:
 
  • https://www.facebook.com/GMALUU

    Louise Larson So, so pretty. Pete's one lucky guy. :-)
  • https://www.facebook.com/peter.deamon

    Peter Deamon I think you're up to something,,,sigh
  • https://www.facebook.com/melba.bjornson

    Melba S. Bjornson Lookin' good, Susan!
  • https://www.facebook.com/darlene.hollingsworth1

    Darlene Hollingsworth Looking Great. Love all that hair!!
  • https://www.facebook.com/GMALUU

    Louise Larson Women are always up to something. How do you think we know what men are doing?
  • https://www.facebook.com/deb.c.chowning

    Deb Collins Chowning You look beautiful. I love your hair!
  • https://www.facebook.com/SusanPI

    Susan Ward Thank you,:)
  • https://www.facebook.com/kathy.roza.3

    Kathy Farren Roza You are so beautiful..your smile!!..your HAIR is awesome <3
  • https://www.facebook.com/viola.hanks

    Viola Hanks Hi Susan, you look awesome. Luv the hair.
  • https://www.facebook.com/judithksachs

    Judy Koch Feth Sachs Great picture,look wonderful
  • https://www.facebook.com/corrine.c.sullivan

    Corrine Corky Sullivan Gosh darn you're a good lookin lady!
  • https://www.facebook.com/SusanPI

    Susan Ward Gosh thanks for all the nice comments
  • https://www.facebook.com/SusanPI

    Susan Ward Whoops I hit the send button to soon. I swore I would never have gray hair. The chemo gave me the gift of gray hair. Haha. Actually I feel better than I have felt in years. Happy and healthy:)


  • Thursday, April 4, 2013

    Genetic Cancer - Out with my girl friends

    THIS WEEK'S TOP STORY http://tracking.waterfrontmedia.com/nlsclick/t.aspx?k=204&d=2013/04/04&e=susanpi@aol.com&utp=&rd=http://www.mayoclinic.com/health/2013-living-with-cancer-conference-v ideo/MY02412/?utm_source=newsletter~amp~utm_medium=email~amp~utm_campaign=living-with-cancer~amp~pubDate=04/04/2013
    Living with Cancer patient conference videos available
    Find out about inheriting cancer, the environment and cancer, pancreatic cancer, alternative cancer therapies and more.
    Always tell all your Doctors about any cancer in your family,including skin leasions and polyps. Precancer = future cancer, if not treated. Send an email to your relatives, you might be surprised at what you find.
     
    Susan xo
     
     
    """"""""""""""""""""""""""""""""""""""""""""
    Opening Day 2013
     


    We had a great time "watching" (ha ha) the Reds playing the Angels.We met for lunch/ to get a table at  2 0' clock at  Game started at 4 0' clock  The game lasted for over- 10 innings. We eventually  left Newport On The Levy and headed to our favorite blues club Mansion Hill. Just like we were still in our 40's we kept going..I had some chili - the game was still on, so the band was not playing:(

     The four of us are in our fifty and sixty's - we chose to miss the band, it was afte 8 0'clock pm. So it was time to wake Peter up from his napping. He came to get me and filled me in on the Jodi Arias trial.
    It was a great day! It was wonderful to be out and about  with my girl friends and not be tired. Peter missed all the fun.

     

    Thursday, March 28, 2013

    Get to know the emotions that are common for cancer survivors

    Hello Everyone. It is Spring and I am doing great. I had a full bone body scan and no signs of cancer! A great report. I am on a different medication,  I am now taking  Arimidex. A recent study shows this is the best prevntive cancer  drug for woman that are post menopausal. This a good thing.
     I am not sure when they start counting the five year recovery mark. I completed the chemo eight months ago and I see Dr. Bandari every four months So it has been almost a year! Moving forward down the living with cancer life path with a smile and postive energy.

     Cincinnati Red's oppening day is Monday! Hopefully it will be warm enough and not raining so we can hang out with other Red's fans:)

    Have a great day!


    Managing your emotions after cancer treatment. This is an excellent article from the Mayo Clinic

    Get to know the emotions that are common for cancer survivors and how to manage your feelings. Find out what's normal and what indicates you should consider getting help.

    Living With Cancer


    Subscribe to our Living With Cancer e-newsletter to stay up to date on cancer topics.
    Sign up now
    When you began your cancer treatment, you couldn't wait for the day you'd finish. But now that you've completed your treatment, you aren't sure if you're ready for life after treatment as a cancer survivor. With your treatment completed, you'll likely see your cancer care team less often. Though you, your friends and your family are all eager to return to a more normal life, it can be scary to leave the protective cocoon of doctors and nurses who supported you through treatment.
    Everything you're feeling right now is normal for cancer survivors. Recovering from cancer treatment isn't just about your body — it's also about healing your mind. So take time to acknowledge the fear, grief and loneliness you're feeling right now. Then take steps to understand why you feel these emotions and what you can do about them.

    Fear of recurrence in cancer survivors

    Fear of recurrence is very common in cancer survivors. Though they may go years without any sign of disease, cancer survivors say the thought of recurrence is always with them. You might worry that every ache or pain is a sign of your cancer recurring. Eventually these fears will fade, though they may never go away completely.
    Cope with your fear by being honest with yourself about your feelings. Try not to feel guilty about your feelings or ignore them in hopes that they'll go away. Ask your doctor about what you can do to reduce your chance of a cancer recurrence. Once you've done all you can to reduce that risk, acknowledge your fears. Take control of those fears and do what you can to influence your future health. Try to:
    • Take care of your body. Focus on keeping yourself healthy. Eat a healthy diet with plenty of fruits and vegetables. Fit exercise into your day. Go easy at first, but try to increase the intensity and amount of exercise you get as you recover. Get enough sleep so that you wake feeling refreshed. These actions may help your body recover from cancer treatment and also help put your mind at ease by giving you a greater sense of control over your life.
    • Go to all of your follow-up appointments. You may fear the worst when it's time for your next follow-up appointment. Don't let that stop you from going. Use the time with your doctor to ask questions about any signs or symptoms that worry you. Write down your concerns and discuss them at your next appointment. Ask about your risk of recurrence and what signs and symptoms to watch for. Knowing more may help you feel more in control.
    • Be open about your fears. Express your concerns to your friends, family, other cancer survivors, and your doctor or a counselor. If you're uncomfortable with the idea of discussing your fears, try recording your thoughts in a journal.
    • Keep busy. Get out of the house and find activities that will take your mind off your fears.
    Most cancer survivors report that the fear of recurrence fades with time. But certain events can trigger your fears. The feelings might be especially strong before follow-up visits to your doctor or the anniversary of your cancer diagnosis.

    Stress in cancer survivors

    When you were diagnosed with cancer, you might have focused completely on your treatment and getting healthy. Now that you've completed treatment, all those projects around the house and the things on your to-do list are competing for your attention. This can make you feel stressed and overwhelmed.
    Don't feel you need to do everything at once. Take time for yourself as you establish a new daily routine. Try exercising, talking with other survivors and taking time for activities you enjoy.

    Depression and anxiety in cancer survivors

    Lingering feelings of sadness and anger can interfere with your daily life. For many people these feelings will dissipate. But for others, these feelings can develop into depression.
    Tell your doctor about your feelings. If needed, you can be referred to someone who can help you through talk therapy, medication or both. Early diagnosis and prompt treatment are keys to successfully overcoming depression.

    Cancer survivors: Managing your emotions after cancer treatment

    Self-consciousness in cancer survivors

    If surgery or other treatment changed your appearance, you might feel self-conscious about your body. Changes in skin color, weight gain or loss, the loss of a limb, or the placement of an ostomy might make you feel like you'd rather stay home, away from other people. You might withdraw from friends and family. And self-consciousness can strain your relationship with your partner if you don't feel worthy of love or affection.
    Take time to grieve. But also learn to focus on the ways cancer has made you a stronger person and realize that you're more than the scars that cancer has left behind. When you're more confident about your appearance, others will feel more comfortable around you.

    Loneliness in cancer survivors

    You might feel as if others can't understand what you've been through, which makes it hard to relate to other people and can lead to loneliness. Friends and family might be unsure of how to help you, and some people may even be afraid of you because you've had cancer.
    Don't deal with loneliness on your own. Consider joining a support group with other cancer survivors who are having the same emotions you are. Contact your local chapter of the American Cancer Society for more information. Or try an online message board for cancer survivors, such as the American Cancer Society's Cancer Survivors Network.

    Where to go for help

    While experiencing any of these emotions is normal, that doesn't mean you have to do it alone. If you find that your feelings are overwhelming you or interfering with your everyday life, it's a good idea to consider getting some help.
    Sometimes talking with friends or family can help. But you might feel like those people can't truly understand what you're going through if they haven't had cancer. You might consider consulting:
    • A therapist. Your doctor may be able to refer you to a professional who can help you sort through your emotions and come up with ways to deal with your feelings.
    • Other cancer survivors. Support groups, whether in your community or online, provide a great place to share your feelings and hear from others who are going through what you're experiencing. You can learn new ways of coping with fears.
    Devise your own plan for coping with your emotions. You know what works best for you. Have an open mind and try different strategies to find out what works best for you.